Hidradenitis suppurativa interferes with various social activities, patients say
According to the study researchers, holistic management of patients with hidradenitis suppurativa can help reduce the burden of their disease.
New survey results highlight the physical and psychological impact of hidradenitis suppurativa (HS) on patients.
The results, from 67 patients with the disease, revealed that these effects can lead to avoidance of certain social activities, including going out and participating in recreational activities. According to the study researchers, holistic management of these patients can help reduce the burden of their disease. They published their findings in priest last month.
“Participation in physical and social activities may improve disease severity and patient well-being, respectively, and their absence may worsen disease outcomes and contribute to feelings of isolation,” the researchers wrote. “Social anxiety may be a contributing factor to the degree of isolation of HS patients. Currently, there are limited data on the effect of HS on participation in social activities.
The researchers analyzed data from patients with HS who completed the survey between June and September 2018. More than half of the patients said that their HS prevented various activities, including playing sports and recreational activities ( 69.4%), social outings or to a special place. event (66.1%), practicing their hobbies (60.0%), attending parties (54.0%) and going out in public (52.3%).
Patients also completed the Brief Fear of Negative Evaluation, which assessed their level of social anxiety. Participants who had higher scores, indicating higher levels of social anxiety, were more likely to have greater interference with all daily activities.
Patients who had more than one body region affected by HS were more likely to report that it affected their social activities “a lot”. Compared to patients with 1 body region affected, these patients were significantly more likely to report that their disease affected their participation in sports and recreation (50.8% versus 0%), social outings, or a special event ( 32.3% versus 0%). , hobbies (32.3% vs. 0%), going to parties (33.3% vs. 0%), going out in public (24.2% vs. 0%) and being with family members (16 .6% versus 0%).
Additionally, respondents with more than 5 painful nodules were more likely to report that activities, such as participating in sports or recreational activities (59.3% vs. 36.1%), going out socially or to a social event (37. 9% vs. 24.3%), doing hobbies (31% vs. 29.7%), going to parties (37% vs. 27%), going out in public (27.6% vs. 18.9%) , and being with family members (22.2% vs. 10.8%), were negatively affected by their disease compared to patients who had 5 or fewer painful nodules.
“Limitations of our study include a small sample size recruited from a single academic center, although our effect size was large enough to detect differences. Our non-response rate was high; however, the demographics of responders and nonresponders were similar,” wrote the researchers, who approached 153 patients to complete the survey. “We did not assess why HS interfered with various social activities, and although we did not assess causality, interventions to reduce isolation of patients with HS may be useful for improve their quality of life.”
Perch PO, Singh R, Senthilnathan A, Feldman SR, Pichardo RO. The impact of hidradenitis suppurativa on social activities: an observational study. priest. Published online May 24, 2022. doi:10.7759/cureus.25292